Support for this campaign helps raise awareness of the specific issues facing terminally ill employees and will also put pressure on national and EU policy makers to look again at the law and make the necessary changes. These changes will ensure that in the future, people battling terminal conditions will not have to worry about losing the dignity of dying in work or their financial security that provides peace of mind for people and their families in this difficult position.
The European Cancer Patients Coalition (ECPC) form the joint secretariat of the campaign and is the voice of cancer patients in Europe. With over 400 members, ECPC is Europe’s largest umbrella cancer patients’ association, covering all EU member states and many other European and non-European countries. ECPC represents patients aﬀected by all types of cancers, from the rarest to the most common.
The European Trade Union Confederation (ETUC) speaks with a single voice on behalf of European workers to have a stronger say in EU decision-making. The ETUC was set up in 1973 and now comprises 90 national trade union confederations in 38 countries, plus 10 European trade union federations.
The European Patients Forum (EPF) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe. Its members represent specific chronic disease groups at EU level or are national coalitions of patients.
The European Federation of Neurological Associations (EFNA) is an umbrella group representing pan-European neurology patient groups and works at a high level with relevant stakeholders from the fields of policy, medical, scientific/research, industry, patient partners and other key opinion leaders.
The Association of European Cancer Leagues (ECL) is a non-profit, pan-European umbrella organisation of national and regional cancer societies. It provides an exclusive platform for members to collaborate with their international peers, primarily in the areas of cancer prevention, tobacco control, access to medicines and patient support, and creates opportunities to advocate for these issues at the EU level.